The University of Kansas Cancer Center Survivorship Transition Clinic
To address the needs of adult survivors of childhood cancers, Midwest Cancer Alliance has teamed up with Children's Mercy Hospitals and KU Medical Center to develop The University of Kansas Cancer Center Survivorship Transition Clinic. The clinic works with pediatric cancer survivors entering young adulthood to facilitate communication with oncologists and primary care providers, help ease the transition and more effectively address the impact of late effects of cancer care.
The clinic's knowledgable staff are available to consult with MCA member hospitals and cancer center medical professionals caring for young adult survivors of cancer and the long term goal is to roll out a regional program through ITV that provides similar transition of care services for patients who reside in MCA-member communities in Western Missouri and Kansas, in collaboration with local care providers.
If you have questions or would like to set up an appointment contact: Kyla Alsman at 913-945-6655
Morgan Simpson, a six-year survivor of non-Hodgkin lymphoma, received her initial treatment at Children's Mercy but will soon switch her care to the Survivorship Transition Clinic The team there will track of her adult health care records, monitor her long-term risk issues during yearly follow-up visits, provide educational materials and referrals and share the results with her primary care physician.
"I was in high school when I was diagnosed but, now that I'm 21, I know it's time to start getting my care in an adult setting that is familiar with my health issues," says Simpson. "It's a big help to have a clinic like this where it's easy to make the switch."
Survivorship Transition Clinic Nurse Navigator
The Survivorship Transitions Clinic Nurse Navigator position is at the heart of the Clinic. The navigator coordinates the transition of adolescent and young adult survivors of pediatric cancers from Children's Mercy Hospital and KU Hospital oncology programs to adult primary and oncology providers at KU and throughout the region. Responsibilities include facilitating patient appointments, providing patient and family education and assisting the physicians in the development of individualized survivorship plans. The navigator also helps identify resources to support the medical, financial, social, and educational needs of the survivor. The navigator serves as a guide for the both the individual and the provider to help ease each patient's individual journey to wellness.
Tour De BBQ Support
Thanks to donations made through the Tour de BBQ event, the Survivorship Transition Clinic has hired a nurse navigator to help guide newly transitioned patients through appointments, tests, follow-up and more -providing emotional support and answering questions every step of the way. To learn more about Tour de BBQ visit http://tourdebbq.com/
Survivorship Transition Clinic Care Team
Kyla Alsman, RN, is the Survivorship Transition Clinic Nurse Navigator. She has nine years of experience as a pediatric hematology/oncology nurse at Children's Mercy. She also worked in a pediatricians office. She has bio/chemotherapy certification.
Joy Fulbright, MD has been an Assistant Professor in the division of Pediatric Hematology/Oncology at UMKC for 3 years and is the Medical Director for the Adolescent and Young Adult program and the Survive and Thrive (long-term follow-up) program. One of her main clinical focuses is on transition and how to improve this process. Currently, she serves on the CMH Transitions Committee and on the KU/CMH Partnership Transitions committee.
Becky Lowry, MD, is the Survivorship Transition Clinic Medical Director. She has been a member of the KU general internal medicine faculty for 8 years. Because of her background of training and certification in both Internal Medicine and Pediatrics, she has a special interest in working with patients making the transition from pediatric to adult medical care and enjoys working with patients with a variety of complex care needs and has developed a particular interest in providing care for childhood cancer survivors.
Wendy McClellan, RN, has 10 years of experience as a pediatric hematology/oncology nurse. She is currently the nurse coordinator for the Survive & Thrive Long-term Follow-up Program at Children's Mercy Hospitals. McClellan is involved in research and education activities centered on childhood cancer survivors, late effects of cancer treatment and transition of childhood cancer survivors.
Jyoti Panicker, MD, is an Associate Professor of Pediatrics at University of Kansas Medical Center and has been Pediatric Hematologist Oncologist for 8 years. She sees children and young adults with a variety of cancer diagnoses and blood disorders. Many of her patients are adolescents and young adults, who are transitioning from childhood dependence on their parents to independent living. She is interested in childhood cancer survivors and late effects of treatment.
Stephen D. Smith, MD is a Professor of Pediatrics at the University of Kansas Medical Center and has been a Pediatric Hematologist Oncologist for over 38 years. Over these years, he has seen the remarkable advances in the treatment of children, adolescents and young adults with cancer. He has a particular interest in the education and medical care of long term cancer survivors.