What is PIVOT?

 PIVOT logo
Patients, families, and caregivers partnering with researchers from 
The University of Kansas Cancer Center 
to re‐define cancer research.

"PIVOT is one of the few cancer center patient advocacy programs in the country to offer cancer survivors and co-survivors the opportunity to partner with cancer researchers and share ideas that may help the researchers develop treatments that better meet patient needs and improve quality of life."

Cheryl Jernigan 
Breast Cancer Survivor and Lead PIVOT Research Advocate


PIVOT's VISION
:
Patients, families, caregivers and researchers accelerating innovative approaches to re-define cancer research together!

PIVOT's MISSION: 
To advocate for cancer research relevant to patients by:

a. Including patients' voices, lived-experiences and perspectives in every step of the decision-making process to inform all aspects of research; 

b. Promoting meaningful partnerships, shared understanding and ongoing communications among patients, families, caregivers and researchers across the spectrum of cancer research;

c. Collaboratively developing education and training among patients, families, caregivers and researchers. The goals are to gain exposure to other perspectives, promote personal growth and increase capacity to enhance the KU Cancer Center and the cancer research community.


WHY DO WE NEED PIVOT?

With PIVOT, patient partners are helping to shape cancer research that reflects what is important to those affected by cancer.   

WHO IS A PATIENT PARTNER? 
Individuals with a lived experience of cancer as a survivor, family/friend caregiver or someone at high risk.   


HOW DOES PIVOT WORK?
Patient Partners will share their views with KU Cancer Center and consortium partner researchers. This will happen in discussions, activities and meetings.   

HOW DO PATIENT PARTNERS HELP?

  • Share their views on specific projects
  • Participate in educational activities about cancer research and what it means to live with cancer
  • Review research projects and grant applications to make sure they address patient concerns
  • Help make educational tools for the public, other advocates and researchers
  • Partner with researchers to make presentations at meetings
  • Help raise understanding about how cancer research improves patient care
Last modified: Nov 15, 2017
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